Stella Blue

My life with metastatic breast cancer.


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Envy

Envy. It’s a sharp, pointy little word, isn’t it? It even looks venomous. Jealous seems rounder, softer. But if you look them up in the dictionary, the definition of jealous has much more barb behind it…

jeal-ous
adjective – feeling resentment against someone because of that person’s rivalry, success, or advantages

en-vy
noun – a feeling of discontent or covetousness with regard to another’s advantages, success, or possessions

If I hadn’t actually looked up the definitions, I would’ve probably written this post using the word jealousy, but envy is more accurate. I don’t know if it’s possible to truly convey all the different thoughts and emotions you have when you’re facing what I am, no matter how good of a writer you are. But I have to tell you that envy is one of them. It’s not a big one, but it’s there. It hovers quietly in the back of my mind, waiting for certain moments in a conversation or snapshots of others living their lives in a way that I never will again. It’s hard for me, and it really stings. I don’t want to feel this way, especially when it comes to friends and family. But it’s my reality, and to deny that it exists isn’t fair to me, or to my readers. I promised myself that I would be totally honest with this blog, and so I have to write this. I hope no one takes offense because I certainly hold nothing against any one of you. The envy is a double-edged sword, because while I may constantly harbor this unwanted guest, I also maintain an acute desire for all of you to have the things that I am covetous of for many, many years to come.

I am confident that anyone in my situation struggles through each day no matter what age they may be, but there are many things that I struggle with at 34 that I think I can safely say the majority of people with stage IV cancer do not have to endure. It’s extremely hard knowing that there will come a day that I will not be able to mother my son — no bedtime stories, morning snuggles, or kisses to make the boo boo’s better. He will probably be too young to understand why, and I worry so much how this will affect him emotionally. When I think about dying I grieve for his loss — how painful and confusing it will be for him, and how difficult it will be for my husband to hear him calling out for me. These things make me envious of my friends. Being Generation X’ers, many of us waited until our early 30’s to marry and have children, choosing to spend our 20’s wrapping up our education and focusing on our careers. The result of that is a Facebook feed that is constantly streaming with newborn photos, second and third pregnancy announcements, pictures of family vacations, chocolate chip cookie smiles, new backpacks for school…I could go on for hours. From the momentous to the trivial, I’m simultaneously overjoyed for my friends and reminded of the things my family will be denied. It’s often hard to talk to them now because in so many ways their lives are just beginning. Spending time with them can be challenging for me as I listen to tales of nights out with other couples, inside jokes and parties missed, plans for home updates, career advancements. It hurts, and then I feel guilty for being envious. It happens with family, too. Conversation tends to be a little more familiar and I think that sometimes allows them to slip into a bit of denial because they are always around. This means that there’s a lot of talk about the future — about Owen growing up, my sister and brother-in-law settling down and having nieces or nephews that I will never get to hold, family reunions. It’s difficult and I try to bury the feelings before they can see it in my eyes.

Now that I’ve been diagnosed with metastases to the brain I am dealing with an entirely new set of emotions, but the envy is still there. Until this diagnosis and treatment I have been relatively well except during chemo. Learning to accept my new situation in combination with whole brain radiation therapy has taken a piece of me that I’m afraid is gone forever. I feel different now, I’m not quite myself. I’m struggling with the littlest things in addition to the big ones — so the envy is different. I’m envious of being able to walk without looking at your feet, of cutting a peach in less than three minutes, talking without concentrating on each word you say, remembering what you said five minutes ago or following a conversation with ease. Things have changed drastically and it’s so very much harder for me than the bleak and raw New Year’s Eve when I found out I was dying. I can’t drive. I can’t think straight. I have a hard time maneuvering through the day. My eyes are out of focus and I don’t talk much. I am at risk of developing dementia within six months. This scares me and makes me worry constantly about what kind of mom I will be to Owen now, what kind of wife, sister, daughter, friend. I am afraid for my career, which introduces an entirely overwhelming set of worries that I don’t want to think about. On top of it all there is the envy — still there, still hovering — except now I’m not envious of others but of who I used to be, and that is devastating.


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Bittersweet

It happens from time to time, I get a glimpse of my “old” life and for a fleeting second forget that I am dying of cancer. These moments are simultaneously wonderful and devastating. I might be out with a friend for lunch, pumping gas into my car, shopping for Owen, or doing dishes at my kitchen sink. It’s always random and for that brief moment I feel free, as though I’m flying and nothing is tethering me down. I feel like I did before, able to live my life without a shadow cast overhead. It doesn’t last very long because reality always comes crashing down, dragging me with it in its vice-like grip. In this moment of clarity — when it all comes rushing back to me — I can’t breathe. I’m ten again and I’ve fallen flat on my back off the trampoline — immobile, breathless, terrified.  This time there is no ground to break my fall, and so I’m left to kick and scream in mid-air with no one to hear me, no one to catch me. Alone and falling, falling so fast — past the memories that were supposed to one day be mine. I reach out to touch them and slide my fingers over their sparkling surface…

The look on Owen’s face when he sees Disney World for the first time.
The birth of our second child, to see again Andrew’s incredible capacity for the patience and self-sacrifice of fatherhood.
Owen’s high school and college graduation ceremonies, his wedding.
Ashlei’s wedding, the birth of her children, becoming an Aunt.
Retirement — relaxing on the dock looking out over the lake with him, my partner in life…reminiscing about the early days and arguing over chores, still.
Grandchildren.

I will not see these momentous occasions, they will occur without my physical presence. I hope that there is more to this life, and that I can be there in some way, spirit or otherwise. I hope that my loved ones will always feel me near as they celebrate those unforgettable moments that life has to offer, but my sorrow at missing out on them is endless. I am so very grateful for the incredible moments I have been blessed to experience and I will hold them close until the end. When my time comes, I will take my last breath knowing that my time here was extraordinary, that during my brief existence I lived and loved as greatly as I could. I know there will be more wonderful memories to make before this happens, but everything for me is tinged with darkness — all of the good moments are bittersweet. Still I fight for them, even though they are broken and imperfect. They may not be the memories I thought they would be, but they will still be special.